Tough Week for E

E's had a bit of a rough week. On Tuesday, his doctor decided to decrease one of his meds because it was making him drowsy during the day. It only took a couple of days before we saw that this wasn't a good move. He became physically aggressive, began making threats, and he started talking about morbid things again.

I continue to have a love/hate relationship with his meds, but this confirmed the fact that he really does need to be on them. It was amazing to see how quickly he deteriorated on the lower dose.

One thing was kind of funny. His teacher emailed and said that E had fallen and gotten a rug burn on his knee. She said that he was as cool as a cucumber about it and was completely calm when she bandaged his knee.

Well, I didn't find out about this until later. All I knew is that he walked in the door after school that day and let out a horrific scream! He continued to scream hysterically, and then became panicked, repeating, "My leg! My leg!" over and over again. He screamed about how he couldn't walk, and he hopped around in circles, crying. He managed to make his way to my lap, where he sat, sobbing. He then became frantic because he wanted the band-aid off but he was afraid to take it off and he didn't know what to do...

Later, when I read his teacher's email, it really illustrated the difference in behaviors between school and home. I'm thankful that he continues to be able to hold it together in school but I also sometimes feel like his teachers think we're exaggerating when we describe E's behaviors.

Today's struggle is asthma. It's bad, the worst it's been in a long time. We had the allergist on call paged, and it took three hours and two subsequent calls for him to call back. We were ready to just go to the hospital, but he finally called and suggested trying prednisolone first, and taking him in to the office tomorrow. He hasn't had prednisolone in a long time, and it will be interesting to see how it affects him. All he needs is more irritability, mood swings, and insomnia!

Prayers appreciated.
It breaks my heart to see him struggle
and to hear him say that his chest hurts.
Thank you!

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